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Why Does Mommy Hurt? Helping Children Cope with the Challenges of Having a Caregiver with Chronic Pain, Fibromyalgia, or Autoimmune Disease

Product ID : 17416594


Galleon Product ID 17416594
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About Why Does Mommy Hurt? Helping Children Cope With The

Product Description The children of people with chronic illness and pain suffer quietly. "Why Does Mommy Hurt?" is a joyful, yet honest, portrayal of family life burdened with chronic illness. This is a delightful story told by a young boy learning to understand and cope with his mother's illness. The story creates natural opportunities for families to talk about both the symptoms of chronic illness, and how they affect family life. Even more importantly, the story puts power into the hands of the children. It also offers a helpful "Tips and Resources" section for parents! A portion of the proceeds benefits the National Fibromyalgia and Chronic Pain Association (NFMCPA). This book is appropriate for a wide-variety of illnesses associated with chronic pain, such as: Lupus, Lyme Disease, ME, CFS, Fibromyalgia, Arthritis, Multiple Sclerosis, Cancer, Depression, Autoimmune Disease, and many others. Review "This is a must- have book for anyone living with chronic illness that has small children"  -HealthCentral.com "Explaining chronic pain to a child can be difficult, especially when they relate being sick to something easily overcome, like a cold." - Loudoun Times Mirror (Front Page Article) From the Author  Turning Suffering and Pain into Joy and Hope; for Children WhyDoesMommyHurt.com The children of people with invisible illness suffer quietly.  As soon as my son, now 3.5, began to communicate, I tried to explain, in words that he could understand, why mommy was unable to play as much as he wanted me to, why I couldn't stay awake longer than a few hours, and why I grimaced and cried from pain so frequently.  How can one explain to a young child, when this is his "normal," that I wish things could be different for him? That he has done nothing wrong when I am crying. That I desperately want to get down on the floor and play blocks, but I literally CAN'T. The guilt of raising a child under these circumstances is overwhelming.  I often force myself to smile, play, and be strong for him.  To walk him a mile and a half to the playground and back, only to lock myself in my room in tears of exhaustion upon arriving back home.  To play catch, legos, playdoh, color... all of the joys of childhood, joys that take so so many "spoons".  After putting him to bed, I often leave his room and immediately lay down in the hallway and cry; exhausted and overwrought with guilt. "I'm not doing enough. I can't do enough. I will never be good enough for him." In order to help my son cope and understand my disease,  I searched the far reaches of the internet for a childrens book on Fibromyalgia, chronic pain, or even just having a sick parent in general. I found absolutely nothing.  Shocked and appalled at the void,  I chose the obvious solution;; I wrote my own.  I had written a few books for him already; one called "Jimmy's Family Story book".  Using photograms, I told the story of his mommy and daddy in our younger years; how we met, our wedding, his birth, and his grandparents, cousins, aunts and uncles.  It quickly became his favorite book; no surprise for a toddler- "a book about ME!") At first, the plan was just to write this new book solely for my son.  However, I could not stop thinking of the millions of other children in the same situation, and the other parents, as desperate as I was.  I knew something had to be done to help those families. Thus began the saga of "Why Does Mommy Hurt?" WhyDoesMommyHurt.com From the Back Cover "This book will help millions!"-Jan Chambers, President of the National Fibromyalgia and Chronic Pain Association "This is a beautifully illustrated book which helps children understand the experience of their parents' chronic illness or pain.  This book helps open up communication about some of the most common problems for those with a chronically ill parent-child relationship, including fatigue, forgetfulness and frustration.  I advise it for all of you parents of small children out there wi